Trying again after 5th miscarriage

[momamia4]

I found the paper with the list that my new RE gave me for what he wants to look into. It says:
1) AMH
2) 46/46 = chromosome testing
3) TSH
4) Phospholipids - This is clotting, right?
5) Uterine testing = HSG which I already had done in Feb and it said my tubes were closed. I'm not sure if he's going to want to do another one since obviously one of my tubes is open.
6) Luteal - I assume this is to check my progesterone with cd21 blood work.

I called the office and they're at lunch. I'll call back in a few minutes and see if I can discuss this with them more. I wish he wasn't on vacation this week. :/ I really want to get all of this done asap. I'm sick of waiting.

[momamia4]

Ok, I just talked with the nurse. (It might be a good thing he's gone. Hehehe!) I was able to convince her to send over the lab req for a full clotting panel. We'll see what she actually sends over. I feel such a huge relief that she went along with it! I just hope it tests enough stuff! I want to have all of my bases covered before I go in and talk with my RE again. I'd like him to be able to provide some definite answers. She told me to see if I could get a copy of my HSG report sent to them. I hope my old RE actually made some type of report of that happening and what the results were. He's kind of shady, so I have no idea if he actually did that. :/

[momamia4]

So it's only Factor V Leiden and antiphospholipid reactive. I think there are more words for the antiphospholipid thing but I can't remember what they are.

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[atomic sagebrush]

Phospholipids is autoimmune where your body attacks the cells. Factor V Leiden is a clotting thing but there are others and this should be tested (like MTHFR and prothrombin but this may be covered in your tests you've already done). The MTHFR is the thing that I find that some RE's are very reluctant to do as they don't always believe in it. Here is a good article that describes these in depth. Clotting Disorders and Recurrent Miscarriage - New York IVF Center

[momamia4]

I already know I am compound heterozygous for mthfr. That's why they have me on the baby aspirin and my old RE said he'd do the heparin but only after he's sure the baby is in my uterus. The problem is that I don't think I'll make it that far without the heparin. I don't know if it's my age or what that's made my clotting worse, but I started having symptoms right after I turned 30. Is there something else I should be doing because of it?

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[essnce629]

I don't know if it's my age or what that's made my clotting worse, but I started having symptoms right after I turned 30. Is there something else I should be doing because of it?

You should be taking folate, not folic acid, as our bodies can't process the folic acid and instead it builds up in our blood instead. Have you been taking folate? I'm taking 3000mcg a day right now. Also, for this reason, you should avoid foods made with "enriched flour" which would have synthetic folic acid. So basically you'd need to avoid gluten/go low carb in order to avoid things with flour. That's what I have done. My folic acid and b12 levels were unusually high when I found out I was homozygous for MTHFR. Now they are in the normal range. Have them test your homocysteine levels too. Increasing your folate usually lowers them. Having high homocysteine levels can cause problems and is common in those with MTHFR mutations.

Here's a study linking recurrent miscarriages with high homocysteine levels and folate deficiency.

[Recurrent spontaneous miscarriages and hyperhomocysteinemia]. - PubMed - NCBI

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[momamia4]

Yes, I have been taking folate for 3 years now. I take a B complex with 5000 mcg of folate, which my doctor told me to take. I never thought about the enriched flour in food though. I'll have to stop eating those foods. I have had my homocysteine checked frequently over the years. It is usually too high. I'm not sure what it is right now but I think it was 7 the last time they checked it. I go see my alternative medicine doctor on Friday, so I was going to ask him to test it. That's they type of doctor that's been following my homocysteine levels for the last 3 years and who told me about my MTHFR.

4 DSs & 5 MCs in my life. Trying to get to the bottom of them & praying for a healthy DD!!

[atomic sagebrush]

Good point on the added folic in the flour.

I swear I thought I replied to this but I think the reason why they won't do the heparin is the reversal. It makes you more likely to have an ectopic which could be potentially fatal if you were on blood thinners like heparin so they have to play it extra cautious.

[atomic sagebrush]

Again, I do not know what might possess a person to post spam in a loss-related thread but I have reported you and if it continues, you WILL be banned.

I am pretty good at seeing through spam posts at this point, so even when you try to make them look innocent, I can still tell that you are a spammer.

If any more show up I will simply start banning every user name you post under until you get bored and give up.

[Throwaway_panther]

I saw this got resurrected from spam atomic, but I wanted to ask -- is there a higher amount of folate you recommend for a history of miscarriages? I'm taking 1800mg folate from supplements plus diet (fortified foods, mango juices, greens, etc. -- the supp amounts are split between 800 in my prenatal and 1000 methylfolate). I know I don't have clotting disorders from testing years ago, so not sure if the high amount of folate other people are taking in here is purely for those and MTHFR?